Skip to main content

Texts Between Me and Diane Swelling Going Down

I think the frequent hospital stays weren’t something any of us expected but everyone rallied to keep someone with Mathew 95% of the time. Sometimes Mathew sent one of us home before the other had arrived because he still needed alone time.

I remember this hospital stay. It was one of the smaller rooms. I slept in a chair. Mathew still needed help getting to and from the bathroom. Mainly, getting the IV unplugged and pushed into the room for him. One time when I was helping him put on his slippers, I remember seeing one half of his foot was still swollen and the other half wasn’t. It was so odd and by the next day, the swelling in the entire foot was gone. 



Texts between me and Diane

Good Morning. I could go up there
and relieve Arpie in a little while and let
Russell visit a few minutes. Then I could
stay through the day and give you a break.
Let me know.
Rec’d 3-23-14


Ok, That would give me a chance
to clean his ‘apartment’ but you better
check with his nurse, Nick, before 
taking Russell in for his sake and Mathew’s
since Russell goes to school and we
don’t want to expose Mathew to anything.
But the nurse will know.


I looked at the instructions.
As long as Russell isn’t sick.
Or had any vaccinations, recently.
Sent 3-23-14


Yes,  I was just thinking about Russell
exposing him to something but we can
just do our trade off in the lobby or something.
Arpie and I will work it out.
Rec’d 3-23-14


Have Arpie as the nurse. I don’t
want to  have Russell miss a 
chance to see him.
Thanks so much.
Wait until you see how 
much fluid is gone from 
from Mat’s legs.

Sent 3-23 14

Comments

Popular posts from this blog

When a Cancer Patient Has a Medical Emergency

3 Days in the DRC, Part 1 If you haven’t read my first post about the DRC at Moffitt and how it works, since Moffitt does not have an ER, you can read about it here.  https://confectionsforcats.blogspot.com/2018/04/neutropenic-fever-after-ie-chemo-and.html In summary, the DRC is where an existing Moffitt patient is directed to go if they have a medical emergency.  Usually, we would be there a few hours or overnight (since we arrived at midnight or shortly afterward) until they had a room for Mathew on the ward. This particular visit Mathew stayed in the DRC three days. As mentioned in my other post, the DRC has maybe two rooms with a bathroom; otherwise, one bathroom for about a dozen patients. In Mathew’s case, a patient with a lowered immune system.  This time Mathew was in the room furthest from the bathroom.  When inpatient, we had a routine for getting him to the bathroom. First, he needed the IV unplugged (often quickly) and most times, I ...

About this Blog, A Journey Through Sarcoma

Confections for Cats, A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music, and writing. Through factual experience, what we learned and what we wish we had known. Mathew’s desire was to give meaning to his journey and in the process help anyone else on a similar path. The last possible explanation in my mind for my son’s health problems was cancer. Even the words “the scan shows a large mass” didn’t lead me to conclude cancer and when the cancer diagnosis was confirmed, I still wasn’t prepared. My Mother is a breast cancer survivor and my sister Elizabeth passed away three years after her breast cancer diagnosis. I thought I knew what cancer treatment and living with cancer looked like, but none of us could imagine or be prepared for how all semblance of routine and normalcy had alre...

The Chemo Bell at Moffitt Cancer Center

Bells ring.  Bells, chime, toll, peal, resonate and resound. Bells foretell, warn and celebrate. The Chemo Bell The Survivor Bell Cancer Centers have one or several large bells, each with a large clapper. They are mounted on the wall and when a patient receives their last chemotherapy or radiation treatment for cancer they ring that bell. Mathew and I heard the Chemo Bell in the Infusion Center at Moffitt ring one time. Early on our journey. Everyone clapped and cheered. Mat and I stopped and looked at the bell that day and I thought at that time, it was a possibility for Mathew. Bells have a vibration. When a chemo bell rings, when a person survives cancer (even if it’s for a short time) they resound for the rest of us. Their survival reverberates and gives the rest of us hope.  I found another chemo bell on the 5th floor at Moffitt, in the hallway, past the patient rooms.  Next to the chemo bell was a copy of a photo of a patient surrounded ...