Mathew’s Journal 5-7-14 I almost fall every time I’m in the shower. Thank God Bob Larkin installed a handrail for free. It’s my lifeline with my newfound shower privileges. - on days I’m too weak I still give myself a sponge bath in fear I’ll hit my head. - Finally now with running water and Dial soap the black bandage lines are rolling up and washing down the drain. - I have stretch marks on my legs from the edema . They look like red streaks of lightning on my inner thigh, leading up to my groin. Ritalin Ritalin - it’s what fills the pages - it’s a miracle for the last 2 weeks all I could do was sleep. - doze off while reading, watching TV, or playing video games. - go see the doctor and she says I can take more Ritalin again, (one of the doctors had significantly lowered my dose). But now I have that fire again, but I’m nervous too - as my veins are going to be filled with that wrathful chemo. A lot of times I’m ...
A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music and writing. Sarcomas are the rarest cancers and predominantly affect the young. This is the story of Sarcoma.