The first Chemo, IE, Inpatient 5 Days I have mentioned before that I want people to get their medical advice from the professionals and if you want to look up more information about the particular chemotherapies that were given to Mathew, you can do so. I will mention what we understood or took notes on. This will be from Mathew’s Journal and the next post from The Notebook. It’s funny but Mathew’s notes were more comprehensive than mine or Diane’s! The pharmacist came to Mathew’s room and spent a long time explaining the chemotherapies, pre-chemo meds, and post-chemo shots. She wrote everything down on the large whiteboard that was in the room. Later, the oncologist told us that Mathew did things out of the normal order. Usually, he said, a patient came to them with a diagnosis, had their port put in and then received the VAC/outpatient chemo first and then the IE 5 day inpatient chemo. Mathew was already inpatient and so ill that he received the IE first. ...
A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music and writing. Sarcomas are the rarest cancers and predominantly affect the young. This is the story of Sarcoma.