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Showing posts from March 18, 2018

First Discharge Going Home!!

Mathew’s first discharge Part Three Going Home!! It was right at 4 weeks from the day Mathew was admitted to the Zephyrhills Hospital with problems unknown, to his transfer to Moffitt Cancer Center in Tampa to a final Diagnosis of a rare soft tissue Sarcoma, to his first round of chemotherapy, 5 days, two chemo each day, to the process of being discharged. I have covered a lot of things that happened the last few days before he went home, but the paperwork, dealing with the insurance (Thanks, Diane!), and everything else required went amazingly smooth.  This post will cover the insurance and pharmacy dealings through text messages between me and Diane. I have my notes from The Notebook about taking Mathew ‘home’. Texts Between Mom and Diane I may be a few minutes late. If he is awake let him know. I should have  just gone to Walmart and bought a  cheap shirt and stayed there. I  drove home tired and accomplished nothing and can barel...

Part Two of Mathew's First Discharge from Moffitt

This post will consist of text messages, an article quoting Dr. Reed, the Sarcoma Doctor, and an explanation of how the pain pump works for dosing and translating all of that information into meds for going home and why it takes a day or so for the transition. Texts Between me and Diane Not home today. Still  transitioning to oral  pain management. Sent March 17 Stent won’t be internalized for a few months  after tumor shrinks and takes pressure off of bile duct and liver. VAC is 12 hours. For going home you need to go downstairs and verify insurance and take Mathew’s I.D. I will cash check  today and give you cash and when you are here we can go to the pharmacy together and figure it out. Sent March 17 I’ll plan on being there about 8:15 tomorrow to get insurance info taken care of. Been on phone with them for past hour getting other claims straightened out…..again. Have they in...

Discharge Preparation Begins, First Discharge from Moffitt

The last few days of chemo and preparing for discharge was a coordinated effort. I will cover a lot of this information through text messages. Several things had to happen: -Mathew needed a lung drain  -For his medications to be changed from IV to pills -Discharge information for       home health care      insurance      and co-pays The people involved in all of this was Mathew, His Dad Arpie, Stepmom Diane, myself and Debra Bock RN Texts Between Myself and Arpie Did I catch Diane before she left?? I am going to stay evening and night. Sent March 15 I will need to go home for a few hours tomorrow to clean Mat’s room and bathroom. Apparently, I also need to wash the cats!!! Sent March 15 We will make it happen. Rec’d March 15 If I can be relieved this afternoon from 1 to 7 that would help a lot then I will come back and spend the night. Sent March 16 Maybe a little a...