After the family meeting with Dr. Reed, he had the results of Mathew’s blood work taken earlier that morning. He told Mathew that he will go to the infusion center to receive his first outpatient VDC chemo. As I mentioned in an earlier post, we didn’t realize that this was the routine for these Sarcoma appointments. So Mathew was not mentally prepared for that chemo. Dr. Reed told him to come back tomorrow. “A day or two won’t make a difference,” he told us. Dr. Reed is one of the nicest people and an excellent doctor. I know he was just trying to assure us that it was okay to delay the chemo but when he said that I thought, “It doesn’t matter.” I was still in let’s hurry, let’s push and muscle through the process to get to the other side. I hadn’t yet learned to live in the process. So the subject of the Sperm Cryopreservation came up and that Mathew had not been able to provide a sample before his first chemo. Dr. Reed asked him if he wanted to try again since we...
A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music and writing. Sarcomas are the rarest cancers and predominantly affect the young. This is the story of Sarcoma.