From The Notebook 3-13-14 (written by Diane) 1:30 Pain Team came in. Dr. Knight very happy w/how he looks. - no changes to pain regimen. Texts between Mom and Diane Tell Mat if he wants any outside food to let me know. I was thinking of picking up some cauliflower, carrots, and broccoli from Golden Corral. Sent March 13 (1/2) Hey Mat suggested that I go home and said he didn’t mind being alone for awhile (working on paper work for next couple of hours). I am starting to crash so (2/2) I’m leaving now. Danielle will be here around 4ish. All docs said all is good and he looks good. Notes caught up. Rec’d March 13 I’m only 15 minutes out. Sent March 13 Perfect! Rec’d March 13 Continued From The Notebook (written by Me) 3:00 - here - massage therapist was here. (part of the palliative team) worked out co-pays (will write a separate post about t...
A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music and writing. Sarcomas are the rarest cancers and predominantly affect the young. This is the story of Sarcoma.