From Mathew’s medical records.
Actual chemo doses.
3/12/14
ETOPOSIDE
etoposide + sodium chloride 0.9%
DOSE: 100 mg, IVPB Q 24 hr.
Dose rate 555 mL/hr infuse over 1 hr
IFOSFAMIDE
ifosfamide + sodium chlorida 0.9%
DOSE: 1,900 mg IVPB, Q 24 hr, Dose rate 588 mL/hr infuse over 1 hr.
MESNA
I am not going to go over the doses because it changes with the day and the chemo being given. It continues to run after the last chemo. Again, it is to protect his bladder.
10 mg of Dexamethasone by IV to prevent nausea
Also for nausea or vomiting:
Ondansetron
Prochlorperazine
Promethazine
There were other medications for the following:
pain
anxiety
antibiotics
itching (from high bilirubin)
to bind the bilirubin (3 of these)
stool softener
diuretic
acid suppression
indigestion
prevent blood from being too thin
Imagine a soccer ball inserted into your abdomen, maybe it needs to be smushed around in order to make it fit. Think about all of the organs and body parts it would impact.
Mathew couldn’t have a bowel movement without being doubled up in pain afterward. Pain added on top of the pain from the tumor.
Most of the time, especially in the beginning, Mathew wanted the room quiet and subdued. No matter how late the chemo was given I stayed awake and if Mathew couldn’t sleep, I stayed awake with him.
Often I sat in the visitor's chair, near the window.
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