Skip to main content

Posts

Showing posts with the label bill bag

From the Notebook Mathew's Anxiety and Pain are Debilitating

From the Notebook  3-7-2014 written by Stepmom Diane **Johanna/Arpie** Noticed Mat feels the need to tell everyone that visits/calls the step-by-step story beginning from months ago. A friend called last night and apparently was asking details about the current situation and I told Mat he didn’t have to explain all that to them at the moment. He was exhausted and stressed already. Perhaps we all need to help him see that the “short answer” to questions from those outside the family is enough. I had noticed (this was me) I recall when I noticed this. It was as if a button was pushed sending Mathew into the exhausting story. Almost verbatim each time. He became more and more drained with each telling.  From the Notebook written by Mom/me 3-8-2014 Problem with too much company is he doesn’t want to elevate his legs. Since company usually starts noonish - around 11 a.m. got him to raise legs. 7:30 Dr. Rashad Normally will take about a week for live...

The Liver Stent for Bile Backup

The Liver Stent As mentioned before, the tumor was wrapped around Mathew’s bile duct and had invaded the liver. The stent was to relieve the backup and allow the bile to either drain outside of his body or into his small intestines. There are different ways the stent can be put in depending on the situation so I won’t get into a big explanation of what it is and how it works right now. At this point, these are some of the things we knew, were focusing on, and dealing with each day: they had narrowed the type of cancer to a small blue round cell cancer. the tumor is fixed and non-moving. Damen Reed from the Sarcoma clinic was the oncologist. Mathew’s leg pain kept increasing. constant fear of a blood clot. edema in legs, genitals, and fluid in his lungs. his body was full of toxins. Mathew was stressed and filled with anxiety. extreme pain in his legs, knees, spasms in his back, difficulty sleeping. at times his body was very hot. there was mention of “palliativ...