From the Notebook 3-7-2014 written by Stepmom Diane **Johanna/Arpie** Noticed Mat feels the need to tell everyone that visits/calls the step-by-step story beginning from months ago. A friend called last night and apparently was asking details about the current situation and I told Mat he didn’t have to explain all that to them at the moment. He was exhausted and stressed already. Perhaps we all need to help him see that the “short answer” to questions from those outside the family is enough. I had noticed (this was me) I recall when I noticed this. It was as if a button was pushed sending Mathew into the exhausting story. Almost verbatim each time. He became more and more drained with each telling. From the Notebook written by Mom/me 3-8-2014 Problem with too much company is he doesn’t want to elevate his legs. Since company usually starts noonish - around 11 a.m. got him to raise legs. 7:30 Dr. Rashad Normally will take about a week for live...
A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music and writing. Sarcomas are the rarest cancers and predominantly affect the young. This is the story of Sarcoma.