Biopsy day Tuesday 2-26-14 In my ignorance, I thought, biopsy, a few days later diagnosis, then treatment starts and we keep moving until we are on the other end. Besides frustration, my ignorance kept me fueled and pushing for those around us to get things done. I don't recall exactly, but I believe the biopsy was in the morning. Extra pain meds were ordered so Mathew could get through it. His level of pain was out of sight. As we learned what the cancer was doing inside of him, each problem it created, each organ it intruded on; each one, a source of great pain. Mathew's Dad and I went down with him to IR (Interventional Radiology). The biopsy was going to be taken through his back, close to his liver. To do that Mathew had to be on his stomach which was excruciating for him. Arpie and I were sent to a waiting room, we were the only ones there. After a while, the door opened. A man in scrubs with his face mask pulled down strode into the room and...
A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music and writing. Sarcomas are the rarest cancers and predominantly affect the young. This is the story of Sarcoma.