I think the frequent hospital stays weren’t something any of us expected but everyone rallied to keep someone with Mathew 95% of the time. Sometimes Mathew sent one of us home before the other had arrived because he still needed alone time. I remember this hospital stay. It was one of the smaller rooms. I slept in a chair. Mathew still needed help getting to and from the bathroom. Mainly, getting the IV unplugged and pushed into the room for him. One time when I was helping him put on his slippers, I remember seeing one half of his foot was still swollen and the other half wasn’t. It was so odd and by the next day, the swelling in the entire foot was gone. Texts between me and Diane Good Morning. I could go up there and relieve Arpie in a little while and let Russell visit a few minutes. Then I could stay through the day and give you a break. Let me know. Rec’d 3-23-14 Ok, That would give me a chance to clean his ‘a...
A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music and writing. Sarcomas are the rarest cancers and predominantly affect the young. This is the story of Sarcoma.