This was my first experience with a team of doctors. Dr. Reed, the Sarcoma doctor, was the head of Mathew’s team. There was surgical oncology in the beginning, though Dr. Gonzalez was on the tumor board, which met one a week. The Interventional Radiology doctors, a medicine team, the Chaplain, and a Social Worker. An important part of Mathew’s team was the pain and palliative clinic. Dr. Knight, the pain and palliative doctor, a psychiatrist and a therapist, Dr. Donovan. They cared for Mathew, both inpatient and outpatient appointments. There were also physical therapists and even a massage therapist that came to see Mathew a few times when he was inpatient. We made so many visits to the Pain and Palliative Clinic that it got to the point that as soon as we walked in, Dr. Knight was notified that Mathew was there. Often when Mathew had other appointments, but not a scheduled Pain and Pailiative appointment, Dr. Knight would text me and tell us to stop by afterward. She w...
A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music and writing. Sarcomas are the rarest cancers and predominantly affect the young. This is the story of Sarcoma.