Mathew kept a journal for years and always had it with him for every doctor's appointment and hospital stay. Even when we went in as an emergency, but he didn't have one with him for that first admission. I don't think we expected him to stay. As it turned out, a former girlfriend's father was on the staff at that hospital and brought Mathew a new journal. Here is the inscription: To Matt, Inspiration comes from the damnedest places. Alan 2-27-14 Alan also brought a guitar to Mathew's room. Such a thoughtful and inspired gesture. Mathew was a musician and practiced many hours a day. As sick as he was, he picked up that guitar and played for the nurses at the Zephyrhills Hospital and at Moffitt, since the guitar made the transfer with us. Though it stayed at home the rest of the times Mathew was inpatient at Moffitt I believe that because it was there, in the beginning, it created a continuum from pre-diagnosis life, to life with canc...
A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music and writing. Sarcomas are the rarest cancers and predominantly affect the young. This is the story of Sarcoma.