Following the feeling of being alone from the last post, I don’t believe anyone other than me ever took Mathew for his appointments over at the Palliative Clinic. Those would include appointments with Dr. Knight, the Pain and Palliative Doctor and the appointments with the counselors. Outpatient chemo was the most frightening to me and it was always just Mathew and me. Once I thought Mathew’s Dad would be able to come and be with him. Texts between me and Arpie Do you know any upcoming dates for chemo or Dr Reed? Recvd April 28 Yes. Thursday he goes for outpatient chemo. First bloodwork and stop by Sarcoma Clinic for appointment with Dr. Reed before going to infusion which is on the 4th floor. I need to go look at times. Sent April 28 Bloodwork 10:45 Dr. Reed 11:30 Then to chemo He will be in chemo for 4 hours Sent April 28 This Thursday. Recvd April 28 Yes, sorry Sent Apri...
A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music and writing. Sarcomas are the rarest cancers and predominantly affect the young. This is the story of Sarcoma.