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Treatment for Soft Tissue Sarcoma is Frightening and Lonely

Following the feeling of being alone from the last post, I don’t believe anyone other than me ever took Mathew for his appointments over at the Palliative Clinic. Those would include appointments with Dr. Knight, the Pain and Palliative Doctor and the appointments with the counselors. Outpatient chemo was the most frightening to me and it was always just Mathew and me. Once I thought Mathew’s Dad would be able to come and be with him.



Texts between me and Arpie

Do you know any upcoming dates 
for chemo or Dr Reed?
Recvd April 28

Yes. Thursday he goes for outpatient chemo. 
First bloodwork and stop by Sarcoma Clinic 
for appointment with Dr. Reed before going 
to infusion which is on the 4th floor. 
I need to go look at times.
Sent April 28

Bloodwork   10:45
Dr. Reed    11:30
Then to chemo
He will be in chemo 
for 4 hours
Sent April 28


This Thursday.
Recvd April 28

Yes, sorry
Sent April 28

Forgot. I have a doctor's
appointment 
this Thursday.
Recvd April 28




I remember thinking that I wanted someone else to see what those outpatient chemotherapies were like. To sit for hours while Mathew tried to pretend he wasn’t in his body. Then the drive home where Mathew was so physically devastated by the chemo that he couldn’t put more than a few words together. My son, the poet, writer and lyricist reduced to a few mumbled words.

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