A reminder; Mathew was finally taken seriously 2-22-14 when he was sent to the hospital and a scan was done. Even then, the assumption was that he had been drinking his liver into a coma or some other horrible self-imposed illness. Mathew Journal 2-4-14 Wake up to another day of feeling like hell. Biting the skin off my lower lip. Pick and scratching skin raw. Sinister visions projected onto the back of my eyelids. Arms and legs sore. Hardly able to get myself into bed. Once eyes closed the visions return again. Played it fast-forward - too fast to ever identify what they are. My heart is aching from beating too fast. And I have constant dry mouth. My left leg drags behind me. Like a ghoul from a horror film. My aching body says “Take another warm bath.” M wallet and my mind say “Enough with the damn baths.” The itching was from the high bilirubin, due to the tumor invading the liver and strangling the bile duct...
A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music and writing. Sarcomas are the rarest cancers and predominantly affect the young. This is the story of Sarcoma.