One of the questions people have when I tell them about this rare cancer, is “What were the symptoms that Mathew had before he was diagnosed?”
There is no one answer to that question. What were the symptoms at what point in time? What were the earliest symptoms? Hard to tell for certain, but in retrospect, I would say they started in High School.
A serious of odd medical conditions with no real answer.
- In High School, he had pain in his groin and the fear was that between karate and high jumping in cheerleading one summer, that he had twisted his vas deferens an ultrasound of his testicles was done and nothing was seen.
But later, he had similar symptoms, locking up of his left hip and pain which eventually affected his left leg. When his cancer was diagnosed it was wrapped around his kidney and renal artery.
2. He had a back injury in wrestling, nothing serious, but they wanted an x-ray to be certain. There was a spot on his lung, they were afraid it was TB. He went to see a pulmonologist who performed more tests and said no TB.
Again, when his cancer was diagnosed, it was wrapped around his spine.
3. After High School graduation Mathew moved out of our house and stayed in a little apartment on some land we owned, just 5 miles away. He told me he suffered from insomnia because of restless leg, which he attributed to an anti-anxiety prescription he had taken, which he discontinued hoping the restless leg would stop.
4. June 2010, he was rear-ended and suffered back pain. He was told it was muscle pain, but it never really went away. At one time he told me he had the feeling of electricity running up his spine at times.
Yes, he was seeing a doctor at this time. I don’t mention it much, because it just makes me angry.
These are just a few things that come to mind at this time. As I think back more will come.
My next post will be an entry from Mathew’s Journal, written three weeks before his admission to the hospital. He wrote about the symptoms that had made his life miserable for the year or more before his diagnosis.
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