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Home Again, Mathew's Thoughts and Fears

With the recent discharge from Moffitt, comes a new list of medications, and a new schedule. But I have the spreadsheet I had made and it isn’t as overwhelming as it was the first time. There is still the evening routine of the Pleurx lung drain, bill drain care and so on. 

Mathew wants a watch cap to wear while he is bald and to keep his head warm. In Florida, March is already Spring and watch caps aren’t easily found. He would prefer one from his Alma Mater, St Leo University. We never did find one of those colors.


Texts between me and Mathew

Do you know where my beanie hat is?
Rec’d March 25

No, must be there somewhere. Look in
bedroom.
Sent March 25

You’ll have to find it. Took it to
hospital.
Rec’d March 25

Ok
Sent March 25

Also, can’t find alcohol wipes.
Rec’d March 25


Look in box in bedroom.
Sent March 25

K. Fell down, feeling weak.
Don’t know why. Sore maybe
from car ride. Take care of
things soon.
Rec’d March 25


Sit down and relax.
Sent March 25

Yeah.
Rec’d March 25
As in all of our lives, there is the external world and our internal worlds. On the same day Mathew and I exchanged these texts, he also wrote in his journal.

From Mathew’s Journal

3-25-14

Got home again from the hospital.
I can’t say that I’m not afraid to end up
back there. But my ANC count jumped up
to 1000 from 100.

  - I felt so weak when my count was low,
I don’t want to feel that way again.

It’s probably unavoidable with the next round.
Taking medicine, body needs medicine
  Bathroom routine  takes so long, wipe down everything 

  disinfect everything.

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