Skip to main content

Our Faces Tell the Story of Our Journey Through Cancer

I didn’t realize it at the time, how much I watched other people’s faces. I’m certain I am not unique. Most of us, even if it is on an unconscious level, are paying close attention to those around us specially when in a crisis. The classic example is portrayed in the media all the time. The expectant family in the waiting area, the doors open and the doctor strides out, often times in scrubs, removing his surgical mask as he approaches the family. Very symbolic. Everyone trying to read the expression on his face, hoping for an unspoken preview of what he will say next.

Then I wondered how other people may have seen my expressions, my face. A caregiver spends a lot of time accompanying their loved one through the hospital or doctors offices. Either walking along with them, pushing them in a wheelchair or following along as they are pushed by transport. Each situation brings it’s own feelings, too many to address in one post. These feelings and nuances of these feelings are reflected on our faces.

An example of this is explained in the post about waiting for someone to come to Mathew’s room with information and answers. How each person who came through his door must have recognized that look on our faces.

I could write a post about each feelings/expression, but the one I am thinking about today is an expression I saw on a strangers face as she accompanied a loved one being discharged after a long hospital stay. As soon as I saw her I thought to myself “I know how she is feeling, I recognized that expression.” It was one of vindication, not quite triumph, mixed with joy. 

I remember feeling that way, the first time Mathew was discharged from Moffitt after almost five weeks in the hospital. I felt that way the first time Mathew was able to walk into Moffitt for his appointments and not be pushed in a wheelchair. 

The story of Mathew’s journey through soft tissue Sarcoma can be told just by his face.






Comments

Popular posts from this blog

About this Blog, A Journey Through Sarcoma

Confections for Cats, A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music, and writing. Through factual experience, what we learned and what we wish we had known. Mathew’s desire was to give meaning to his journey and in the process help anyone else on a similar path. The last possible explanation in my mind for my son’s health problems was cancer. Even the words “the scan shows a large mass” didn’t lead me to conclude cancer and when the cancer diagnosis was confirmed, I still wasn’t prepared. My Mother is a breast cancer survivor and my sister Elizabeth passed away three years after her breast cancer diagnosis. I thought I knew what cancer treatment and living with cancer looked like, but none of us could imagine or be prepared for how all semblance of routine and normalcy had alre...

The Chemo Bell at Moffitt Cancer Center

Bells ring.  Bells, chime, toll, peal, resonate and resound. Bells foretell, warn and celebrate. The Chemo Bell The Survivor Bell Cancer Centers have one or several large bells, each with a large clapper. They are mounted on the wall and when a patient receives their last chemotherapy or radiation treatment for cancer they ring that bell. Mathew and I heard the Chemo Bell in the Infusion Center at Moffitt ring one time. Early on our journey. Everyone clapped and cheered. Mat and I stopped and looked at the bell that day and I thought at that time, it was a possibility for Mathew. Bells have a vibration. When a chemo bell rings, when a person survives cancer (even if it’s for a short time) they resound for the rest of us. Their survival reverberates and gives the rest of us hope.  I found another chemo bell on the 5th floor at Moffitt, in the hallway, past the patient rooms.  Next to the chemo bell was a copy of a photo of a patient surrounded ...

When a Cancer Patient Has a Medical Emergency

3 Days in the DRC, Part 1 If you haven’t read my first post about the DRC at Moffitt and how it works, since Moffitt does not have an ER, you can read about it here.  https://confectionsforcats.blogspot.com/2018/04/neutropenic-fever-after-ie-chemo-and.html In summary, the DRC is where an existing Moffitt patient is directed to go if they have a medical emergency.  Usually, we would be there a few hours or overnight (since we arrived at midnight or shortly afterward) until they had a room for Mathew on the ward. This particular visit Mathew stayed in the DRC three days. As mentioned in my other post, the DRC has maybe two rooms with a bathroom; otherwise, one bathroom for about a dozen patients. In Mathew’s case, a patient with a lowered immune system.  This time Mathew was in the room furthest from the bathroom.  When inpatient, we had a routine for getting him to the bathroom. First, he needed the IV unplugged (often quickly) and most times, I ...