The first week Mathew was at Moffitt he was given a planning guide for adolescents and young adults. It covers how they want to be comforted, supported, what medical treatments they want at end of life, things they want their family to know and more.
It seems innocuous at first glance but I suspect Mathew realized at he went through it what the possible outcomes for him could be. Dr. Knight, the pain and palliative doctor, helped him get started. The social worker witnessed his signature for his choice of health care agent/caregiver.
To be honest, I didn't read through this until after Mathew had passed away. Though everything in it he had gone over with me many times in different ways. Often in our drives back and forth to appointments, Mathew explained his wishes and his beliefs to me and how he wanted his end of life services conducted. Right down to his wish that one of his cats be present with him when he passed, so they would understand what happened and not look for him afterward.
Here are 2 pages from this pamphlet.
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