Skip to main content

Not Everyone Will be as Supportive as Hoped or Needed

Opposition can come from the least expected places when caring for someone. I understand that people become exhausted by the ups and downs and constant vigilance. The stress from that is something I have tried to convey in certain series of blog posts. But there are people in our lives, we assume have our back through thick and thin, life and death. Both Mathew and I found this not to be so, a painful but eye-opening lesson.

These two texts I sent to my sister Kathleen are only a few weeks into Mathew’s treatment. This subject also goes back to another post where Mathew asks the doctors when he can go back to work and he is told that with his cancer and type of treatments he will be receiving, work (and as we quickly found out normal life) is not possible.



Texts to my sister Kathleen

I was just calling when I was alone because Carlos 
told me yesterday that when Mat comes home I 
need to let him grow up and learn to take care of 
himself and that everyone needs to stop babying him.
Sent April 7


I asked the pain doctors if they thought he can be 
left alone and they said occasionally for a small 
amount of time but in general, his condition 
changes so rapidly that Mathew may not realize 
he has a fever or is in trouble.
Sent April 7
Labels:

Comments

Post a Comment

Popular posts from this blog

Replace the 3 Lumen Pic Line with a Port

Mathew's 3 Lumen Pic Line was replaced with a Power P.A.C. Both Mathew and I were given Medical I.D. cards to carry at all times. I have mentioned before that texting from the DRC is almost impossible. The staff told me it used to be the X-ray department so the walls are leaded. Again, the phone tree would have helped so much. I texted the following information to my niece, my sister and Mathew’s Dad and Stepmom. And probably Joseph and Carlos. I know that could have been reduced to two texts, three at the most. At the time  I didn’t know about group messaging as my phone was an old Android. Texts Between me and Diane Hi. We are at the hospital early because Mat is in a lot of pain.  We think the bill stent may have moved. Sent 3-31-14 Because he was NPO for other  procedure they should be able to fix today. Sent 3-31-14 In the DRC sending texts is almost impossible so if you don’t hear from me for a while don’t worry. If ...
Post a Comment
Read more

A Cancer Poem by Mathew Rodgers 2014

From Mathew’s Journal 4-5-14 “I lie awake in my pain bed metallic noises chirping from my strange computer  companion”
Post a Comment
Read more

About this Blog, A Journey Through Sarcoma

Confections for Cats, A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music, and writing. Through factual experience, what we learned and what we wish we had known. Mathew’s desire was to give meaning to his journey and in the process help anyone else on a similar path. The last possible explanation in my mind for my son’s health problems was cancer. Even the words “the scan shows a large mass” didn’t lead me to conclude cancer and when the cancer diagnosis was confirmed, I still wasn’t prepared. My Mother is a breast cancer survivor and my sister Elizabeth passed away three years after her breast cancer diagnosis. I thought I knew what cancer treatment and living with cancer looked like, but none of us could imagine or be prepared for how all semblance of routine and normalcy had alre...
Post a Comment
Read more