Mathew’s first I.E. chemo was a 50% dose because his liver was still recovering. The tumor had invaded his liver and his bilirubin was still above normal. As a result, it took his system longer to process the chemotherapy drugs and I was told that because of that, it would have the same effect as a full dose. Later I would wonder if there was a way to replicate the slower processing of the chemo. A better angle, a different angle. Anything to give his weakened body a chance against the cancer.
When it was time for the second round of I.E., Mathew went to a full dose.
Texts between me and Allison
Next 5 day I.E. starts on the 15th.
Sent April 10
Good!
Received April 10
Started I.E. this morning.
This time he slept through it.
Question: How long does the
chemo continue to work?
Does it stop when his ANC returns to
normal or can it continue to work after that?
I was wondering if since the last scan was
two weeks ago if it may have shrunk even more.
Sent April 16
Hard to say. It’s technically out of his system
in a few days but tumor can continue to
respond.
But we usually don’t repeat scan that often
as it won’t change what we are doing.
Received April 16
My mind was always working, trying to find a way around the cancer. I didn’t doubt or second guess his Medical Team, but I know that sometimes advances come from brainstorming and my brain was in overdrive. Dr. Reed was always so kind and listened to everything I came up with. I suspect he realized my “ideas” were a normal result of a parent's frantic mind, trying to find an answer to the unanswerable. To make sense out of the nightmare we found ourselves in, running for our lives. Mathew’s life.
Often I write this blog and continue the same path Mathew and I took. At a less frantic pace, but just as lonely. Lonely then. Lonely now. I don’t suppose there are many people searching the internet for Desmoplastic Small Round Cell Sarcoma.
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