Mathew is sick enough that his writing deteriorates for a few days.
HIs cousin Allison comes for a visit and two caregiver tips.
Mathew’s Journal
4-4-14
- email Dr Pharr
- email Drupon and Virginia
- email Ralph and Paula
- update Carol
- update Allyson
- call Stephanie
- update Brookie
Then his handwriting goes downhill.
to get home
billiary infection
can’t be sure
blood cultures negative but if it was
there it was isolated - still using
Texts Between Me and Allison
His Neutrophil count is down to 100.
He needs blood today.
Sent April 3
Was thinking of coming to visit
today. Is it a good day?
Rec’d April 4
Sure!! We could use something
cheerful. His white count is even
lower today.
Sent April 4
Great. Can you send me the
hospital address?
Rec’d April 4
Also, if he would like some
outside food I could stop
on my way there. Either
lunch or Dunkin Donuts
etc.
Rec’d April 4
93 preliminary, may change
Sent April 4
?? 93 is ANC?
Rec’d April 4
Yep. I hope they check
it again today.
Sent April 4
Are you on your way now?
Sent April 4
Yes. About an hour.
Rec’d April 4
Great. Call when you get on
campus and I w ill meet you
out front.
Sent April 4
What did you tell Mat to get for his bottom?
Rec’d April 4
Just diaper cream. LOL
Like Balmex, but they are all the same. He
said he was pretty raw.
Rec’d April 4
Two caregiver tips****
- - One is obvious from the texts. Balm or an equivalent for a rare bottom.
2. - And the other, when Allison arrived, she asked if we had seen the most recent scan and we said no. She asked one of the nurses to see about setting it up. They were able to do it right there in the room. I hadn’t realized that was possible.
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