Skip to main content

Insert Port, Check Biliary Drain, CT Scan and Mathew is Admitted Again

Texts between me and Kathleen

I just had the weirdest feeling. As if I am in a movie
and our individual reactions to each up and down
is just filler. That the end of the story is already 
written. It had a calming feeling to it.
And you know I don’t believe all that
“it was just their time” that our lives are predestined 
crap.
Sent 3-31-14


        Sandy, the nurse was just here. She says her
        nursing skills are at out disposal. So she can
        help with shots etc. So don’t worry.
        Rec’d 3-31-14


He’s out. Port is in. Couldn’t find any problem
with biliary drain. Is draining now. Maybe
clogged but he is still complaining about pain.
Of course, he is not fully conscious. Will be in
a few hours before we can go home.
Sent 3-31-14


         Hope pain goes away.
         Rec’d 3-31-14

They are going to do a CT scan to see
what they can figure out about why in so
much pain. He can’t go home in this
much pain.
Sent 3-31-14


          Ok. Hope it’s not serious.
          Rec’d 3-31-14


Me too. What’s funny is he is starting to pink up.
Don’t know if he is having a reaction to meds
or since his bilirubin is dropping his normal
color is returning.
Sent 3-31-14

His hair is falling out.
Sent 3-31-14


          Mom said you are not coming
          home. Hope they figure out soon.
          Rec’d 3-31-14

Chemo catching up with him.
Sent 3-31-14

          LOL. Alarm for 8:00 meds just went off.
          Rec’d 3-31-14


Finally, room 518. No results
yet from CT scan.
Sent 3-31-14


           OMG you must be exhausted.
           Rec’d March 3-31-14


Yep and my feet are killing me.
Sent 3-31-14


           Hope scan gives good info.
           Rec’d 3-31-14


Allison said it was weird it came 
on so strong and sudden. 
Sent 3-31-14



























Labels:

Comments

Post a Comment

Popular posts from this blog

About this Blog, A Journey Through Sarcoma

Confections for Cats, A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music, and writing. Through factual experience, what we learned and what we wish we had known. Mathew’s desire was to give meaning to his journey and in the process help anyone else on a similar path. The last possible explanation in my mind for my son’s health problems was cancer. Even the words “the scan shows a large mass” didn’t lead me to conclude cancer and when the cancer diagnosis was confirmed, I still wasn’t prepared. My Mother is a breast cancer survivor and my sister Elizabeth passed away three years after her breast cancer diagnosis. I thought I knew what cancer treatment and living with cancer looked like, but none of us could imagine or be prepared for how all semblance of routine and normalcy had alre...
Post a Comment
Read more

When a Cancer Patient Has a Medical Emergency

3 Days in the DRC, Part 1 If you haven’t read my first post about the DRC at Moffitt and how it works, since Moffitt does not have an ER, you can read about it here.  https://confectionsforcats.blogspot.com/2018/04/neutropenic-fever-after-ie-chemo-and.html In summary, the DRC is where an existing Moffitt patient is directed to go if they have a medical emergency.  Usually, we would be there a few hours or overnight (since we arrived at midnight or shortly afterward) until they had a room for Mathew on the ward. This particular visit Mathew stayed in the DRC three days. As mentioned in my other post, the DRC has maybe two rooms with a bathroom; otherwise, one bathroom for about a dozen patients. In Mathew’s case, a patient with a lowered immune system.  This time Mathew was in the room furthest from the bathroom.  When inpatient, we had a routine for getting him to the bathroom. First, he needed the IV unplugged (often quickly) and most times, I ...
Post a Comment
Read more

Hair Loss After Chemo for Sarcoma, My Son's Point of View

I can't imagine or pretend to know how it feels to lose your hair because you have cancer and the chemo causes your hair to fall out.  I only know what I saw with Mathew and years ago, my sister Elizabeth's experience as they lost their hair to chemotherapy. But it was something that affected Mathew more than just the initial hair loss, it had nuances. Here is a journal entry. It's short but I think it speaks volumes. MATHEW’S JOURNAL     5-23-14 Lately, I’ve been envious of people’s hair. Well, I guess not envious of other people’s hair but missing mine. I told my Mom about it and expressed to her that I was afraid I was falling prey to vanity. She expressed the idea that I may be missing having hair because it’s part of being healthy. I do miss having a life and at the same time, I’m afraid that I may never have a full life again or that I may lose what’s left of the one I have. -  I’ve been thinking about dying a lot lately. I don’t know wh...
Post a Comment
Read more