Skip to main content

Texts Between Me and Mathew

Just when I thought we were getting into some sort of routine, things change.
  • I was having to go back and forth to my house twice a day, to keep up with things there, while staying with Mathew at my sister’s.
  • Usually in the early evenings, when I was gone, Kathleen (Tia), set an alarm to double check that Mat took his 7 p.m. meds.
  • My Mom was cooking and sending breakfast and dinner over to Mathew in takeout containers.

Texts between Me and Mathew   3-20-14

Got to Pharmacy with 5 mins to spare.
Everything ok. Tia alright with company.
Sent 3-20-14


Yep. So far so good.
Rec’d 3-20-14

Victoria there?
Sent 3-20-14

Not yet.
Rec’d 3-20-14


Did you take 7:00 meds?
Sent 3-20-14

Yep.
Rec’d 3-20-14


I’m making a spreadsheet
and printing copies.
Sent 3-20-14


Ok sounds good. I can help.
Rec’d 3-20-14


Are you coming back tonight cuz
I’m out of bottle water. I could maybe
have Victoria run to get me some.
Rec’d 3-20-14

Yes. I’ll bring some.
Sent 3-20-14


Kk cool. You think Gatorade is okay
to drink after this time still.
Record 3-20-14

No
Sent
3-20-14

LOL. Ok.
Rec’d 3-20-14


From Mathew’s Journal

3-21-14

Construction is here to install bath rails. The guys were nice, conscious of dust. Home Health is coming again to give me Neupogen injection. I had not had a bowel movement in over 3 days. I started having them again luckily yesterday with the help of RX. Vey painful. I think I’m getting back on track now.

My legs are shrinking very quickly, my swelling is going down. I’m getting better but not without suffering.



Texts between me and Mathew 3 -21-14

Everything ok Chongo?
Sent 3-21-14

Yep, just sore.
Everything else is good.
Rec’d 3-21-14

Ok.
Sent 3-21-14

Quel has been up my butt.
Rec’d 3 21-14

Ha!
Sent 3-21-14

You have 7:00 meds. They are
in pill box.
Sent 3-21-14

Yeah, we got it sorted out.
Rec’d 3 -21-14


Bad diarrhea for last half hour.
Can smell bilirubin in it.
Rec’d 3-21-14


Stop pineapple juice. Miralax.
Probably just overdid it.
Take temp and look at paperwork
on far right shelf.
What does it say about diarrhea?
Sent 3-21-14

K. I think it says stop Miralax.
Rec’d


Call me.
Sent 3-21-14

Temp. 
Sent 3-21-14

Comments

Popular posts from this blog

About this Blog, A Journey Through Sarcoma

Confections for Cats, A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music, and writing. Through factual experience, what we learned and what we wish we had known. Mathew’s desire was to give meaning to his journey and in the process help anyone else on a similar path. The last possible explanation in my mind for my son’s health problems was cancer. Even the words “the scan shows a large mass” didn’t lead me to conclude cancer and when the cancer diagnosis was confirmed, I still wasn’t prepared. My Mother is a breast cancer survivor and my sister Elizabeth passed away three years after her breast cancer diagnosis. I thought I knew what cancer treatment and living with cancer looked like, but none of us could imagine or be prepared for how all semblance of routine and normalcy had alre...

When a Cancer Patient Has a Medical Emergency

3 Days in the DRC, Part 1 If you haven’t read my first post about the DRC at Moffitt and how it works, since Moffitt does not have an ER, you can read about it here.  https://confectionsforcats.blogspot.com/2018/04/neutropenic-fever-after-ie-chemo-and.html In summary, the DRC is where an existing Moffitt patient is directed to go if they have a medical emergency.  Usually, we would be there a few hours or overnight (since we arrived at midnight or shortly afterward) until they had a room for Mathew on the ward. This particular visit Mathew stayed in the DRC three days. As mentioned in my other post, the DRC has maybe two rooms with a bathroom; otherwise, one bathroom for about a dozen patients. In Mathew’s case, a patient with a lowered immune system.  This time Mathew was in the room furthest from the bathroom.  When inpatient, we had a routine for getting him to the bathroom. First, he needed the IV unplugged (often quickly) and most times, I ...

A Second Chance for Sperm Cryopreservation

After the family meeting with Dr. Reed, he had the results of Mathew’s blood work taken earlier that morning. He told Mathew that he will go to the infusion center to receive his first outpatient VDC chemo. As I mentioned in an earlier post, we didn’t realize that this was the routine for these Sarcoma appointments. So Mathew was not mentally prepared for that chemo. Dr. Reed told him to come back tomorrow. “A day or two won’t make a difference,” he told us. Dr. Reed is one of the nicest people and an excellent doctor. I know he was just trying to assure us that it was okay to delay the chemo but when he said that I thought, “It doesn’t matter.”  I was still in let’s hurry, let’s push and muscle through the process to get to the other side. I hadn’t yet learned to live in the process.  So the subject of the Sperm Cryopreservation came up and that Mathew had not been able to provide a sample before his first chemo. Dr. Reed asked him if he wanted to try again since we...