Skip to main content

Texts Between Me and Mathew

Just when I thought we were getting into some sort of routine, things change.
  • I was having to go back and forth to my house twice a day, to keep up with things there, while staying with Mathew at my sister’s.
  • Usually in the early evenings, when I was gone, Kathleen (Tia), set an alarm to double check that Mat took his 7 p.m. meds.
  • My Mom was cooking and sending breakfast and dinner over to Mathew in takeout containers.

Texts between Me and Mathew   3-20-14

Got to Pharmacy with 5 mins to spare.
Everything ok. Tia alright with company.
Sent 3-20-14


Yep. So far so good.
Rec’d 3-20-14

Victoria there?
Sent 3-20-14

Not yet.
Rec’d 3-20-14


Did you take 7:00 meds?
Sent 3-20-14

Yep.
Rec’d 3-20-14


I’m making a spreadsheet
and printing copies.
Sent 3-20-14


Ok sounds good. I can help.
Rec’d 3-20-14


Are you coming back tonight cuz
I’m out of bottle water. I could maybe
have Victoria run to get me some.
Rec’d 3-20-14

Yes. I’ll bring some.
Sent 3-20-14


Kk cool. You think Gatorade is okay
to drink after this time still.
Record 3-20-14

No
Sent
3-20-14

LOL. Ok.
Rec’d 3-20-14


From Mathew’s Journal

3-21-14

Construction is here to install bath rails. The guys were nice, conscious of dust. Home Health is coming again to give me Neupogen injection. I had not had a bowel movement in over 3 days. I started having them again luckily yesterday with the help of RX. Vey painful. I think I’m getting back on track now.

My legs are shrinking very quickly, my swelling is going down. I’m getting better but not without suffering.



Texts between me and Mathew 3 -21-14

Everything ok Chongo?
Sent 3-21-14

Yep, just sore.
Everything else is good.
Rec’d 3-21-14

Ok.
Sent 3-21-14

Quel has been up my butt.
Rec’d 3 21-14

Ha!
Sent 3-21-14

You have 7:00 meds. They are
in pill box.
Sent 3-21-14

Yeah, we got it sorted out.
Rec’d 3 -21-14


Bad diarrhea for last half hour.
Can smell bilirubin in it.
Rec’d 3-21-14


Stop pineapple juice. Miralax.
Probably just overdid it.
Take temp and look at paperwork
on far right shelf.
What does it say about diarrhea?
Sent 3-21-14

K. I think it says stop Miralax.
Rec’d


Call me.
Sent 3-21-14

Temp. 
Sent 3-21-14

Comments

Popular posts from this blog

Replace the 3 Lumen Pic Line with a Port

Mathew's 3 Lumen Pic Line was replaced with a Power P.A.C. Both Mathew and I were given Medical I.D. cards to carry at all times. I have mentioned before that texting from the DRC is almost impossible. The staff told me it used to be the X-ray department so the walls are leaded. Again, the phone tree would have helped so much. I texted the following information to my niece, my sister and Mathew’s Dad and Stepmom. And probably Joseph and Carlos. I know that could have been reduced to two texts, three at the most. At the time  I didn’t know about group messaging as my phone was an old Android. Texts Between me and Diane Hi. We are at the hospital early because Mat is in a lot of pain.  We think the bill stent may have moved. Sent 3-31-14 Because he was NPO for other  procedure they should be able to fix today. Sent 3-31-14 In the DRC sending texts is almost impossible so if you don’t hear from me for a while don’t worry. If ...

Why is it Called Confections for Cats?

I want to take a moment and talk about why Project Mathew is called Confections for Cats. The main reason is that it was going to be the title of his first album. He had sketched up some artwork. We were working on it in Photoshop. Here is an early permutation of the artwork. Mathew's life, his story is mainly about music, his music, and his journey through cancer. When he created his Facebook page, he named it Confections for Cats and I continued with that name. I have been thinking about a logo, a way to incorporate cats, Sarcoma and his music. I like to brainstorm. So, I was thinking about the word confections. When Mathew first told me that title, this was before his diagnosis, I recall thinking about how he practiced his guitar into the night and early morning and that his cats have been his constant audience. Sweets, confections for his cats, and his music as delicious morsels for our ears. I looked up the word confections and yes, a confection is a sweet. Bu...

The Rollercoaster of Chemotherapy Fewer Highs and More Lows

TEXTS BETWEEN ME AND ARPIE Mat sees Dr. Reed Thursday at 9 and then at 1 he goes to have biliary stent changed to a larger gauge. We had to reattach a bag this morning. Sent May 12                                                                  I have Dr's appointment myself Thursday                                                                  will call after and see if you are still                                                                  with Dr. Reed.   ...