From Mathew's Journal, Thoughts and Feelings of a Young Man with Sarcoma

Again, the outer world for Mathew and his inner world from his journal.

Texts between me and Mat

Are you awake? Look at the pillbox

in the room. One has pills.

Plus your powder. Plus in the

fridge in cooler are your IVs. Looks

like it’s a two part deal, put on

desk in bedroom.

Going to Walmart to find a

watch cap for you.

Sent 3-26-14

KK. Sounds good.

Rec’d 3-26-14

Everything ok?

Sent 3-26-14

Everything is ok.

Rec’d 3-26-14

Stopping to put in gas.

Need sweethearts?

Sent 3-26-14

Hard sprees if they have them.

If not, cinnamon buttons.

If not, sweethearts.

Rec’d 3-26-14

K. See you in about 15

Sent 3-26-14

From Mathew’s Journal

Later today I meet with the head honcho Sarcoma doctor.

His name is Dr. Reed and I’ve only met him once so far

in the treatment process.

Whenever I meet with the doctors I have felt at a distinct disadvantage.

drugged up and lying in a bed

trying to keep my wits and other mental facilities about me.

Knocking things over with shaky hands,

“Yes sirs, no sirs, Yes Ma’ams, No Ma’ams, One last questions and Thank you”

It’s all blurring together and I have a

I can’t sleep - I feel 1,000 feet away from

my body, but I can hear my heart

pounding like a ritual drum.

The sound of the train horn.

The sound of its wheels on the track.

My abdomen is hurting on and off,

I hope that it gets better.

Comments

Replace the 3 Lumen Pic Line with a Port

Mathew's 3 Lumen Pic Line was replaced with a Power P.A.C. Both Mathew and I were given Medical I.D. cards to carry at all times. I have mentioned before that texting from the DRC is almost impossible. The staff told me it used to be the X-ray department so the walls are leaded. Again, the phone tree would have helped so much. I texted the following information to my niece, my sister and Mathew’s Dad and Stepmom. And probably Joseph and Carlos. I know that could have been reduced to two texts, three at the most. At the time I didn’t know about group messaging as my phone was an old Android. Texts Between me and Diane Hi. We are at the hospital early because Mat is in a lot of pain. We think the bill stent may have moved. Sent 3-31-14 Because he was NPO for other procedure they should be able to fix today. Sent 3-31-14 In the DRC sending texts is almost impossible so if you don’t hear from me for a while don’t worry. If ...

Why is it Called Confections for Cats?

I want to take a moment and talk about why Project Mathew is called Confections for Cats. The main reason is that it was going to be the title of his first album. He had sketched up some artwork. We were working on it in Photoshop. Here is an early permutation of the artwork. Mathew's life, his story is mainly about music, his music, and his journey through cancer. When he created his Facebook page, he named it Confections for Cats and I continued with that name. I have been thinking about a logo, a way to incorporate cats, Sarcoma and his music. I like to brainstorm. So, I was thinking about the word confections. When Mathew first told me that title, this was before his diagnosis, I recall thinking about how he practiced his guitar into the night and early morning and that his cats have been his constant audience. Sweets, confections for his cats, and his music as delicious morsels for our ears. I looked up the word confections and yes, a confection is a sweet. Bu...

The Rollercoaster of Chemotherapy Fewer Highs and More Lows

TEXTS BETWEEN ME AND ARPIE Mat sees Dr. Reed Thursday at 9 and then at 1 he goes to have biliary stent changed to a larger gauge. We had to reattach a bag this morning. Sent May 12 I have Dr's appointment myself Thursday will call after and see if you are still with Dr. Reed. ...

Confections For Cats

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