Skip to main content

Medications and The Monkey Bag

As I mentioned in the last post, I spent some time that first night organizing a schedule for Mathew’s many prescriptions. I also mentioned the need to have prescription bottles for carrying medicine with us as we went back and forth for appointments or any time we left the house. 

Here are two photos showing the medication list sent home with Mathew from Moffitt and my attempt at a spreadsheet.











Mathew came home shortly before Easter that year. Carlos gave him an enormous Easter basket, the theme was monkeys. As a teenager, Carlos nicknamed Mathew Chongo. It stuck. One of the items in the Easter basket was this small plastic bag with a cute monkey on it. It was the perfect size for carrying meds, alcohol packets and supplies for the biliary stent and bag, and a granola bar or two. We called it The Monkey Bag. 

Here’s a picture of it in an examination room in the Sarcoma Clinic.



Labels:

Comments

Post a Comment

Popular posts from this blog

Replace the 3 Lumen Pic Line with a Port

Mathew's 3 Lumen Pic Line was replaced with a Power P.A.C. Both Mathew and I were given Medical I.D. cards to carry at all times. I have mentioned before that texting from the DRC is almost impossible. The staff told me it used to be the X-ray department so the walls are leaded. Again, the phone tree would have helped so much. I texted the following information to my niece, my sister and Mathew’s Dad and Stepmom. And probably Joseph and Carlos. I know that could have been reduced to two texts, three at the most. At the time  I didn’t know about group messaging as my phone was an old Android. Texts Between me and Diane Hi. We are at the hospital early because Mat is in a lot of pain.  We think the bill stent may have moved. Sent 3-31-14 Because he was NPO for other  procedure they should be able to fix today. Sent 3-31-14 In the DRC sending texts is almost impossible so if you don’t hear from me for a while don’t worry. If ...
Post a Comment
Read more

A Cancer Poem by Mathew Rodgers 2014

From Mathew’s Journal 4-5-14 “I lie awake in my pain bed metallic noises chirping from my strange computer  companion”
Post a Comment
Read more

About this Blog, A Journey Through Sarcoma

Confections for Cats, A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music, and writing. Through factual experience, what we learned and what we wish we had known. Mathew’s desire was to give meaning to his journey and in the process help anyone else on a similar path. The last possible explanation in my mind for my son’s health problems was cancer. Even the words “the scan shows a large mass” didn’t lead me to conclude cancer and when the cancer diagnosis was confirmed, I still wasn’t prepared. My Mother is a breast cancer survivor and my sister Elizabeth passed away three years after her breast cancer diagnosis. I thought I knew what cancer treatment and living with cancer looked like, but none of us could imagine or be prepared for how all semblance of routine and normalcy had alre...
Post a Comment
Read more