As I mentioned in the last post, I spent some time that first night organizing a schedule for Mathew’s many prescriptions. I also mentioned the need to have prescription bottles for carrying medicine with us as we went back and forth for appointments or any time we left the house.
Here are two photos showing the medication list sent home with Mathew from Moffitt and my attempt at a spreadsheet.
Mathew came home shortly before Easter that year. Carlos gave him an enormous Easter basket, the theme was monkeys. As a teenager, Carlos nicknamed Mathew Chongo. It stuck. One of the items in the Easter basket was this small plastic bag with a cute monkey on it. It was the perfect size for carrying meds, alcohol packets and supplies for the biliary stent and bag, and a granola bar or two. We called it The Monkey Bag.
Here’s a picture of it in an examination room in the Sarcoma Clinic.
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