Texts Between Mom and Stepmom

Texts to Diane (Mat’s Stepmom) Regarding the scan ordered to check the placement of the stent (see last blog post from Mat’s Journal).

He’s back….everything is in

place…no details other than that.

Rec’d March 10

Sent March 10

Arpie is coming up in a bit if

you want to wait until later this

afternoon/evening.

Rec’d March 10

Am on way

Sent March 10

LATER THAT DAY

Dr has ordered an ultrasound of his

abdomen. Worried about a clot.

Will let you know when he goes.

Sent March 10

Yikes! Did he say what would

do if there is one?

Rec’d March 10

No. A clot can be so serious.

Sent March 10

Yep. Many ppl are praying

and that’s what will make

a difference.

Rec’d March 10

Chaplain had just been here.

Sent March 10

Good

Rec’d March 10

Down at Radiology. Nurse said it

may take awhile.

Sent March 10

K….waiting anxiously!

Rec’d March 10

Back in room, no word yet.

Sent March 10

Glad it’s over. Let us know

Rec’d March 10

Ok. I’m afraid he may have seen

the tumor on the ultrasound.

Sent March 10

Dr Rashard showed

him the scan last week.

Rec’d March 10

Oh ok

Sent March 10

Your friend Michelle came

to waiting room and talked to

me. She is very nice.

Sent March 10

Awesome! She said she

would try to get down. She

is a very special person.

Rec’d March 10

No clot!!!

Sent March 10

Praise you Lord!!

Rec’d March 10

Yep. We should have some more

answers tomorrow too. Don’t tell

Mat I told you…..I think I’ve been

muted.

Sent March 10

<:0>

Rec’d March 10

Any word from Dr. about today’s

game plan or other info?

Rec’d March 11

Primary came in today. Bill is down to 5.3! Pathologist and

medical oncologist coming in to talk about treatment options. He

will be transferred to their care.

Sent March 11

Medical Oncologist team member

says since his liver isn’t ready for

chemo they are going to use this

time to take another biopsy of

tumor and bone marrow. More

info later today.

Sent March 11

Biopsy will not be today.

Maybe tomorrow.

Sent March 11

Can you forward to Arpie and

Danielle since I am now restricted

on what and who I can text.

Sent March 11

Certainly!! LOL Would have

asked Mat but thought he may

be resting. Is he awake now?

Rec’d March 11

Yes.

Sent March 11

No fever last night but was

worn out from tests.

Sent March 11

Thx so much

Rec’d March 11

Doing paracentesis right now.

Hoping that will remove a large

amount of fluid from his body and

give him some relief. Chemo starts

this afternoon and a visit from the barber at 3.

Sent March 12

Replace the 3 Lumen Pic Line with a Port

Mathew's 3 Lumen Pic Line was replaced with a Power P.A.C. Both Mathew and I were given Medical I.D. cards to carry at all times. I have mentioned before that texting from the DRC is almost impossible. The staff told me it used to be the X-ray department so the walls are leaded. Again, the phone tree would have helped so much. I texted the following information to my niece, my sister and Mathew’s Dad and Stepmom. And probably Joseph and Carlos. I know that could have been reduced to two texts, three at the most. At the time I didn’t know about group messaging as my phone was an old Android. Texts Between me and Diane Hi. We are at the hospital early because Mat is in a lot of pain. We think the bill stent may have moved. Sent 3-31-14 Because he was NPO for other procedure they should be able to fix today. Sent 3-31-14 In the DRC sending texts is almost impossible so if you don’t hear from me for a while don’t worry. If ...

Thoracentesis to Remove Fluid on the Lung

2-28-15 From the Notebook Fluid on right side of lung Needs to be drained, done from the back Can be done bedside Send out for testing CAUSE? could be a bodily reaction - most likely this because fluid wasn’t present when he arrived or could be tumor has entered the lung. Mathew had been complaining about his right shoulder hurting (this was from the fluid on his lung). He thought it was from the previous October when he was taken by ambulance from work when they thought he was having seizures. He wondered if the EMT's had hurt his shoulder when restraining him. He will reference this in his music and writing. A local oncologist is brought in who says he will be starting Mathew’s treatment. More news on the diagnosis: -Neg for lymphoma -not traditional carcinoma -uncommon sarcoma -pancreas -looking for rare cancers Again my ignorance, I thought that a rare cancer would get more results. Backward thinking. Here is a photo of t...

A Cancer Poem by Mathew Rodgers 2014

From Mathew’s Journal 4-5-14 “I lie awake in my pain bed metallic noises chirping from my strange computer companion”

Confections For Cats

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