Still Waiting for a Diagnosis

Texts to a friend

Giving him something to drink to trap and expel toxins.

Dr said he has at this point about 25% chance which can

up if diagnosis is a germ cell or go down if a different type

or if his liver stops improving. Hoping by early week liver is

ready and have pathology in. Already has oncologist biting

at the bit to get started. Worse case, tumor cuts off something

important before treatment can start or treatment needs to

start before diagnosis, (he doesn’t expect that). Of course we

understand, there can be numerous complications.

Sent March 8

Our moods go up and down. He is on oxygen,

blood thinner and needs to use a walker.

Sent March 8

Are you driving back and forth a lot?

Rec’d March 8

I usually stay 36 hours at a time.

Sent March 8

Is his Dad doing the same?

Rec’d March 8

Not as often because he

manages a Firestone. His wife

stays overnight sometimes

but they have a 13 year old

with Downs Syndrome who

needs routine.

Sent March 8

Oh man.

Rec’d March 8

Is there anything he needs or wants?

Rec’d March 8

I’ll ask him. His legs are so swollen

he’s in large shorts. I think once

he is home he may need some

things.

He wants a way to wash his hair without water.

Sent March 8

I will look that up for you.

Rec’d March 8

Comments

Replace the 3 Lumen Pic Line with a Port

Mathew's 3 Lumen Pic Line was replaced with a Power P.A.C. Both Mathew and I were given Medical I.D. cards to carry at all times. I have mentioned before that texting from the DRC is almost impossible. The staff told me it used to be the X-ray department so the walls are leaded. Again, the phone tree would have helped so much. I texted the following information to my niece, my sister and Mathew’s Dad and Stepmom. And probably Joseph and Carlos. I know that could have been reduced to two texts, three at the most. At the time I didn’t know about group messaging as my phone was an old Android. Texts Between me and Diane Hi. We are at the hospital early because Mat is in a lot of pain. We think the bill stent may have moved. Sent 3-31-14 Because he was NPO for other procedure they should be able to fix today. Sent 3-31-14 In the DRC sending texts is almost impossible so if you don’t hear from me for a while don’t worry. If ...

Why is it Called Confections for Cats?

I want to take a moment and talk about why Project Mathew is called Confections for Cats. The main reason is that it was going to be the title of his first album. He had sketched up some artwork. We were working on it in Photoshop. Here is an early permutation of the artwork. Mathew's life, his story is mainly about music, his music, and his journey through cancer. When he created his Facebook page, he named it Confections for Cats and I continued with that name. I have been thinking about a logo, a way to incorporate cats, Sarcoma and his music. I like to brainstorm. So, I was thinking about the word confections. When Mathew first told me that title, this was before his diagnosis, I recall thinking about how he practiced his guitar into the night and early morning and that his cats have been his constant audience. Sweets, confections for his cats, and his music as delicious morsels for our ears. I looked up the word confections and yes, a confection is a sweet. Bu...

The Rollercoaster of Chemotherapy Fewer Highs and More Lows

TEXTS BETWEEN ME AND ARPIE Mat sees Dr. Reed Thursday at 9 and then at 1 he goes to have biliary stent changed to a larger gauge. We had to reattach a bag this morning. Sent May 12 I have Dr's appointment myself Thursday will call after and see if you are still with Dr. Reed. ...

Confections For Cats

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