Still Waiting for a Diagnosis

Texts to a friend

Giving him something to drink to trap and expel toxins.

Dr said he has at this point about 25% chance which can

up if diagnosis is a germ cell or go down if a different type

or if his liver stops improving. Hoping by early week liver is

ready and have pathology in. Already has oncologist biting

at the bit to get started. Worse case, tumor cuts off something

important before treatment can start or treatment needs to

start before diagnosis, (he doesn’t expect that). Of course we

understand, there can be numerous complications.

Sent March 8

Our moods go up and down. He is on oxygen,

blood thinner and needs to use a walker.

Sent March 8

Are you driving back and forth a lot?

Rec’d March 8

I usually stay 36 hours at a time.

Sent March 8

Is his Dad doing the same?

Rec’d March 8

Not as often because he

manages a Firestone. His wife

stays overnight sometimes

but they have a 13 year old

with Downs Syndrome who

needs routine.

Sent March 8

Oh man.

Rec’d March 8

Is there anything he needs or wants?

Rec’d March 8

I’ll ask him. His legs are so swollen

he’s in large shorts. I think once

he is home he may need some

things.

He wants a way to wash his hair without water.

Sent March 8

I will look that up for you.

Rec’d March 8

Comments

Replace the 3 Lumen Pic Line with a Port

Mathew's 3 Lumen Pic Line was replaced with a Power P.A.C. Both Mathew and I were given Medical I.D. cards to carry at all times. I have mentioned before that texting from the DRC is almost impossible. The staff told me it used to be the X-ray department so the walls are leaded. Again, the phone tree would have helped so much. I texted the following information to my niece, my sister and Mathew’s Dad and Stepmom. And probably Joseph and Carlos. I know that could have been reduced to two texts, three at the most. At the time I didn’t know about group messaging as my phone was an old Android. Texts Between me and Diane Hi. We are at the hospital early because Mat is in a lot of pain. We think the bill stent may have moved. Sent 3-31-14 Because he was NPO for other procedure they should be able to fix today. Sent 3-31-14 In the DRC sending texts is almost impossible so if you don’t hear from me for a while don’t worry. If ...

A Cancer Poem by Mathew Rodgers 2014

From Mathew’s Journal 4-5-14 “I lie awake in my pain bed metallic noises chirping from my strange computer companion”

Hair Loss After Chemo Part II, Mom's Point of View

Mathew always had awesome hair. Rock and roll hair. When he first started treatment, they shaved his head. He still wasn't bald, plus it represented the beginning of treatment. It was temporary until the cancer was gone and he was well again. Before treatment started, Mathew was so sick I wondered how he would accept the change. He hadn't wanted anyone seeing him when he was first hospitalized. But I was surprised how quickly he adjusted to the new look. Then when treatment started and his hair fell out it coincided with the tumor responding to the chemo, so overall he looked so much better than he had for a long time. Less bloated and healthier color. I was so happy he was responding to the treatment, that being bald didn't bother me. I'm a Mom, I thought he looked terrific. Mathew was dismayed over the bald look at first. It made him appear younger, and since he also lost his eyebrows and eyelashes, he referred to it as that ...

Confections For Cats

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