From Mat's Journal "You Say Dilaudid I Say Laudanum"

From Mathew’s Journal

I am leaving out parts that were already covered in the notebook about signing the release for the biopsy slides and the plan outlined by Dr G.

He had also made note of the case manager, the tech and his nurse.

• Stent in liver maybe Monday not depend on stent inside.

• Nothing Mon after midnight.

• If can’t drain enough inside need to do from outside - like a catheter -not

permanent.

• Stay on blood thinner for safety.

• Pain Dr come today

• trying to get me outpatient

• small % of having to re-do biopsy ****

****They were concerned that the biopsy taken at Zhills would not be sufficient. I told them that the IR Dr showed me the large chunk he took.

As it turned out, they didn’t need another biopsy. Later I called the IR Dr at Zhills and thanked him. If they had redone the biopsy when they had planned or hadn’t been able to diagnose when they did, it would have delayed treatment.

“Crunching the timeline.”

**Dr Knight (pain and palliative doctor) check the amount of times button has been pressed to gauge levels.

*inferior ven cava collapsed.

*stent internal or external tomorrow no eating

*may be doing exploratory laparotomy.

*may be debulked, but not removed.

-Dilaudid

- 0.1 hourly release

could go up to .2 or .7 looking to get to .2

-Can't overdose - haven’t been overusing.

MEDS

Allopurinol 300 mg/daily

Fragmin - 5000 units 1 x day

Colace - 100 mg 2 x day

Protonix - 40 mg 1x day (IV)

As needed

Xanax - .5 mg up to 3x day

Benadryl

Temazepam 15 mg as needed

Dilaudid pain med IV

Funny Note:

When they were talking about Dilaudid, both Mathew and I heard Laudanum.

After the Dr left he said, “I thought I heard them say Laudanum. at first.”

“Me too,” I said.

Mathew said I thought I had gone back in time to the Civil War or something.

We both laughed so hard because it just struck us as so bizarre and funny.

Replace the 3 Lumen Pic Line with a Port

Mathew's 3 Lumen Pic Line was replaced with a Power P.A.C. Both Mathew and I were given Medical I.D. cards to carry at all times. I have mentioned before that texting from the DRC is almost impossible. The staff told me it used to be the X-ray department so the walls are leaded. Again, the phone tree would have helped so much. I texted the following information to my niece, my sister and Mathew’s Dad and Stepmom. And probably Joseph and Carlos. I know that could have been reduced to two texts, three at the most. At the time I didn’t know about group messaging as my phone was an old Android. Texts Between me and Diane Hi. We are at the hospital early because Mat is in a lot of pain. We think the bill stent may have moved. Sent 3-31-14 Because he was NPO for other procedure they should be able to fix today. Sent 3-31-14 In the DRC sending texts is almost impossible so if you don’t hear from me for a while don’t worry. If ...

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