Texts Between Mom and Joseph

Monday

MOM

He had MRI. As soon as we get

results or talk to Dr, I will call

2-24-14

Mat said to tell you sorry he’s

feeling crappy. Will talk to you when

he can.

2-24-14

He’s been in a lot of pain today.

2-24-14

JOSEPH

Biopsy yet?

2-25-14

MOM

No. Dr just here, said test showing

originating from liver or pancreas,

negative, which is good news.

2-25-14

He will probably go home tomorrow

until Moffitt contacts him.

2-25-14

Call from nurse at Dr S office. Dr S

spoke to admitting at Moffitt and

faxed Mathew’s hospital records to

them. As soon as they find a doctor

to take Mat’s case they will call Dr S

and transfer him to Moffitt.

2-26-14

The call I received from the primary doctor's nurse came early that evening. She called out of concern to let me know that the doctor was working on Mathew's treatment plan over time. That he had spoken to Dr. G, down at Moffitt who agreed to take Mathew's case and she had just finished faxing all the information down there.

Comments

Replace the 3 Lumen Pic Line with a Port

Mathew's 3 Lumen Pic Line was replaced with a Power P.A.C. Both Mathew and I were given Medical I.D. cards to carry at all times. I have mentioned before that texting from the DRC is almost impossible. The staff told me it used to be the X-ray department so the walls are leaded. Again, the phone tree would have helped so much. I texted the following information to my niece, my sister and Mathew’s Dad and Stepmom. And probably Joseph and Carlos. I know that could have been reduced to two texts, three at the most. At the time I didn’t know about group messaging as my phone was an old Android. Texts Between me and Diane Hi. We are at the hospital early because Mat is in a lot of pain. We think the bill stent may have moved. Sent 3-31-14 Because he was NPO for other procedure they should be able to fix today. Sent 3-31-14 In the DRC sending texts is almost impossible so if you don’t hear from me for a while don’t worry. If ...

A Cancer Poem by Mathew Rodgers 2014

From Mathew’s Journal 4-5-14 “I lie awake in my pain bed metallic noises chirping from my strange computer companion”

Hair Loss After Chemo Part II, Mom's Point of View

Mathew always had awesome hair. Rock and roll hair. When he first started treatment, they shaved his head. He still wasn't bald, plus it represented the beginning of treatment. It was temporary until the cancer was gone and he was well again. Before treatment started, Mathew was so sick I wondered how he would accept the change. He hadn't wanted anyone seeing him when he was first hospitalized. But I was surprised how quickly he adjusted to the new look. Then when treatment started and his hair fell out it coincided with the tumor responding to the chemo, so overall he looked so much better than he had for a long time. Less bloated and healthier color. I was so happy he was responding to the treatment, that being bald didn't bother me. I'm a Mom, I thought he looked terrific. Mathew was dismayed over the bald look at first. It made him appear younger, and since he also lost his eyebrows and eyelashes, he referred to it as that ...

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