Skip to main content

My Son is Jaundiced


Saturday, Feb 22

 I noticed Mathew was jaundiced (yellow), so I took him down to the walk-in clinic run by my doctor's office. Unfortunately, the Nurse Practitioner on duty didn't know either myself or Mathew, and we were met with the same treatment we had met from previous doctors.

 "Do you use drugs?"
 "Do you have homosexual sex?"
 "How much do you drink?"

And finally sending me out of the room in hopes that my son would confess to any number of addictions or activities to explain away his ill health.
(Later, Mathew's Sarcoma Doctor would tell us how often this happens with sarcomas. A social worker called it 'The Story of Sarcoma').

We were told to come back on the scheduled appointment day to get bloodwork results. But as we were leaving the examining room, the nurse told the Nurse Practitioner that the bloodwork was in. I paused, hoping she would call us back into the examining room to give us the results.
I could see her face as she looked at the computer screen.
She looked frightened.
She sent us home and told Mathew to stay hydrated and wait for her call.
 Four hours later, she calls and asks to speak to me.
 -come by the office and pick up paperwork
 -take Mathew to ER
 -paperwork would ensure no waiting

Since we were with my parents, they offered to drive. On the way, I told Mathew to let his Dad know. He reached his Stepmom.
 "I'm going to the ER; the Doctor thinks there is something wrong with my liver."
 Her response. "Probably from drinking too much." ****

********I debated on this part, whether or not to mention Mat's StepMom's remark or omit it entirely, but all of us made mistakes, had the misconceptions. Starting this blog when and where I did, puts her as the first person to be in this position. These mistakes and erroneous ideas are a large and important part of this story because we are all human.


Comments

Popular posts from this blog

About this Blog, A Journey Through Sarcoma

Confections for Cats, A Journey through Sarcoma is a chronicle of my son's journey through Desmoplastic Small Round Cell Sarcoma. It is intended to educate and inspire by using Mathew’s thoughts and feelings, dreams and fears through a variety of mediums; art, music, and writing. Through factual experience, what we learned and what we wish we had known. Mathew’s desire was to give meaning to his journey and in the process help anyone else on a similar path. The last possible explanation in my mind for my son’s health problems was cancer. Even the words “the scan shows a large mass” didn’t lead me to conclude cancer and when the cancer diagnosis was confirmed, I still wasn’t prepared. My Mother is a breast cancer survivor and my sister Elizabeth passed away three years after her breast cancer diagnosis. I thought I knew what cancer treatment and living with cancer looked like, but none of us could imagine or be prepared for how all semblance of routine and normalcy had alre...

When a Cancer Patient Has a Medical Emergency

3 Days in the DRC, Part 1 If you haven’t read my first post about the DRC at Moffitt and how it works, since Moffitt does not have an ER, you can read about it here.  https://confectionsforcats.blogspot.com/2018/04/neutropenic-fever-after-ie-chemo-and.html In summary, the DRC is where an existing Moffitt patient is directed to go if they have a medical emergency.  Usually, we would be there a few hours or overnight (since we arrived at midnight or shortly afterward) until they had a room for Mathew on the ward. This particular visit Mathew stayed in the DRC three days. As mentioned in my other post, the DRC has maybe two rooms with a bathroom; otherwise, one bathroom for about a dozen patients. In Mathew’s case, a patient with a lowered immune system.  This time Mathew was in the room furthest from the bathroom.  When inpatient, we had a routine for getting him to the bathroom. First, he needed the IV unplugged (often quickly) and most times, I ...

Hair Loss After Chemo for Sarcoma, My Son's Point of View

I can't imagine or pretend to know how it feels to lose your hair because you have cancer and the chemo causes your hair to fall out.  I only know what I saw with Mathew and years ago, my sister Elizabeth's experience as they lost their hair to chemotherapy. But it was something that affected Mathew more than just the initial hair loss, it had nuances. Here is a journal entry. It's short but I think it speaks volumes. MATHEW’S JOURNAL     5-23-14 Lately, I’ve been envious of people’s hair. Well, I guess not envious of other people’s hair but missing mine. I told my Mom about it and expressed to her that I was afraid I was falling prey to vanity. She expressed the idea that I may be missing having hair because it’s part of being healthy. I do miss having a life and at the same time, I’m afraid that I may never have a full life again or that I may lose what’s left of the one I have. -  I’ve been thinking about dying a lot lately. I don’t know wh...