Skip to main content

My Son is Jaundiced


Saturday, Feb 22

 I noticed Mathew was jaundiced (yellow), so I took him down to the walk-in clinic run by my doctor's office. Unfortunately, the Nurse Practitioner on duty didn't know either myself or Mathew, and we were met with the same treatment we had met from previous doctors.

 "Do you use drugs?"
 "Do you have homosexual sex?"
 "How much do you drink?"

And finally sending me out of the room in hopes that my son would confess to any number of addictions or activities to explain away his ill health.
(Later, Mathew's Sarcoma Doctor would tell us how often this happens with sarcomas. A social worker called it 'The Story of Sarcoma').

We were told to come back on the scheduled appointment day to get bloodwork results. But as we were leaving the examining room, the nurse told the Nurse Practitioner that the bloodwork was in. I paused, hoping she would call us back into the examining room to give us the results.
I could see her face as she looked at the computer screen.
She looked frightened.
She sent us home and told Mathew to stay hydrated and wait for her call.
 Four hours later, she calls and asks to speak to me.
 -come by the office and pick up paperwork
 -take Mathew to ER
 -paperwork would ensure no waiting

Since we were with my parents, they offered to drive. On the way, I told Mathew to let his Dad know. He reached his Stepmom.
 "I'm going to the ER; the Doctor thinks there is something wrong with my liver."
 Her response. "Probably from drinking too much." ****

********I debated on this part, whether or not to mention Mat's StepMom's remark or omit it entirely, but all of us made mistakes, had the misconceptions. Starting this blog when and where I did, puts her as the first person to be in this position. These mistakes and erroneous ideas are a large and important part of this story because we are all human.


Comments

Popular posts from this blog

Replace the 3 Lumen Pic Line with a Port

Mathew's 3 Lumen Pic Line was replaced with a Power P.A.C. Both Mathew and I were given Medical I.D. cards to carry at all times. I have mentioned before that texting from the DRC is almost impossible. The staff told me it used to be the X-ray department so the walls are leaded. Again, the phone tree would have helped so much. I texted the following information to my niece, my sister and Mathew’s Dad and Stepmom. And probably Joseph and Carlos. I know that could have been reduced to two texts, three at the most. At the time  I didn’t know about group messaging as my phone was an old Android. Texts Between me and Diane Hi. We are at the hospital early because Mat is in a lot of pain.  We think the bill stent may have moved. Sent 3-31-14 Because he was NPO for other  procedure they should be able to fix today. Sent 3-31-14 In the DRC sending texts is almost impossible so if you don’t hear from me for a while don’t worry. If ...

Why is it Called Confections for Cats?

I want to take a moment and talk about why Project Mathew is called Confections for Cats. The main reason is that it was going to be the title of his first album. He had sketched up some artwork. We were working on it in Photoshop. Here is an early permutation of the artwork. Mathew's life, his story is mainly about music, his music, and his journey through cancer. When he created his Facebook page, he named it Confections for Cats and I continued with that name. I have been thinking about a logo, a way to incorporate cats, Sarcoma and his music. I like to brainstorm. So, I was thinking about the word confections. When Mathew first told me that title, this was before his diagnosis, I recall thinking about how he practiced his guitar into the night and early morning and that his cats have been his constant audience. Sweets, confections for his cats, and his music as delicious morsels for our ears. I looked up the word confections and yes, a confection is a sweet. Bu...

The Rollercoaster of Chemotherapy Fewer Highs and More Lows

TEXTS BETWEEN ME AND ARPIE Mat sees Dr. Reed Thursday at 9 and then at 1 he goes to have biliary stent changed to a larger gauge. We had to reattach a bag this morning. Sent May 12                                                                  I have Dr's appointment myself Thursday                                                                  will call after and see if you are still                                                                  with Dr. Reed.   ...